Commission for the Rights of Persons with Disability
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With all my love, Carmen Bickle

Published 17 Sep 2021


On World Alzheimer’s Day, Carmen Bickle talks about the heartbreak of caring for a loved one with dementia

Dementia, one of the worst diseases that can happen to someone you love.

In my case, it is my sister, who is only 60, and who was diagnosed five years ago with Frontotemporal Dementia. It disrupts your life completely and fills you with sadness. One minute you have a healthy energetic sister taking care of a family of five children and suddenly you have a completely different one. It is a daily struggle to cope with her needs. Her husband left work and became her main carer.

All the family tries to carry a piece of his load. She has lost all sense of concentration and coordination. The hardest thing in all this is knowing that you are never going to see her the way she was, or get your dear sister back. So all I can do is to try to accept and do whatever I can, for as long as I can, with all my love.